To submit your child or family's photo please email email@example.com.
Stacy and Jared Holtgrewe
"Pregnancy in and of itself is challenging enough. Pregnancy complications add several more layers of challenges and emotions.
Why us? Have others been through this before? How do we tell our family and friends? What about our toddler at home?
The SHINE Perinatal and Pediatric Palliative Care Program with Blank Children’s Hospital was and still is our best resource to help find answers to these challenging questions.
Around week 16 of our pregnancy we discovered one of our twin girls was slightly smaller than the other. We were sent to a neonatologist where we told that our daughter, Harlyn, would very likely not survive due to having restricted growth concerns. Our doctor referred us to SHINE (a service we had never heard of) and set up our initial appointment and meeting – even though we weren’t certain we wanted to attend. But we are so glad we did!
The first thing that stands out to us about SHINE is their ability to listen. They truly cared and didn’t try to have an answer or solution for all our questions or concerns – sometimes, they just listened and tried to comfort us or give us a hug or share a story. We felt like we had an advocate throughout our entire journey.
They also encouraged us think about things that no parent should ever have to but looking back, I am so glad we were prepared for everything that was about to come our way. Being pregnant with twins made things a lot more complicated and they did an excellent job talking through all the situations and being prepared for the absolute worst. They also walked along side us the 43 days we were in the NICU with our surviving twin, Finley. They visited on a very regular basis and made sure we had access to any available resources.
We know that even now … almost two years from working closely with the SHINE team … we can reach out and they’d do everything they could to help. We are forever thankful."
Colin and Kimberly Hurd
"At 20 weeks in utero, at a routine ultrasound, doctors found some abnormalities pointing to complications in their first pregnancy with their son, Kolbe Scott Hurd. Kolbe was eventually diagnosed with a lethal condition called Triploidy. This diagnosis has a 0% survival rate. Colin and Kimberly were blessed to carry Kolbe for 33 weeks. He was born on August 26, 2015. Kolbe's life was short but not insignificant. He made a tremendous impact in the lives of many others in his 33 weeks of life.
The S.H.I.N.E. team worked with the Hurds during and after their pregnancy with Kolbe. They were the first people, outside of their immediate families, to hear Kolbe’s story. In addition, they offered an extra layer of support to help provide encouragement and strength during the most devastating loss a parent can face.
The Hurd’s goal was to make a lifetime of memories in the few hours they would have with their son. S.H.I.N.E provided this as they helped in planning and executing their birth plan. They had molds and other various materials ready at the hospital for memory making items that the Hurds could take home.
The S.H.I.N.E team continues to reach out to the Hurds, providing still a layer of support as they continue to grieve the loss of their son. Colin states, “I would recommend anyone experiencing an in-utero diagnosis to utilize the support of the S.H.I.N.E program.” Kimberly adds, “Kolbe’s story would not be the same without them. We would not have had the important resources we did. They are and will continue to be a part of our lives as we continue to grow our son’s legacy.”
Most parents are given the opportunity to raise, nurture, and help their children grow. Unfortunately, this was not the case for the Hurd’s with their son. Colin and Kimberly decided to take the energy and time they would have spent raising Kolbe to make a difference in other people’s lives. After this devastating loss, Kolbe’s parents wanted his legacy to continue on in a tangible way. They have invited other families who have experienced or will experience the loss of a child to participate in helping to fund the monetary needs to build a 12-child home in India. Their hope is to give families a simple, yet meaningful, opportunity to create a lasting legacy in honor of their child while also making a difference in the lives of other children."